Monday, May 7, 2012

Picture day


 Family means Everything  :)  


Riley is a very amazing little guy who makes your day
wonderful... Riley is such a wonderful baby
we love to spend are days with Family...

This is Riley and his cousin Cody who is spending
time together and enjoying the day..

                                                          Daddy is holding me in his lap..
                                         It's daddy time together.. which Riley Bug loves
                                                                      to do...


                                                                     Riley and Uncle Phillip
                                                          So much love for Riley and he has so much
                                               love for everyone else.. not very often do we get to hold
                                                     Riley bug and take pics..

                                                                          Riley and Uncle Phillip
                                                          Remembers Last forever!!
                                                        Cousin Cody is showing so much love to
                                                                           Riley bug
                                                          Having some Cody time!!
                                                                   Riley is such a strong little
Riley is doing okay.. The family is tyring to spend as much time as they can with sweet Riley because we don't know when that time will come and we want to make every remember we can with him.. I am very bless to be his mommy, even thou it is very hard at times and I feel so lost, I know deep down in side this is where I am suppose to be in my life.. Riley Bug means to much to me and to many people.. Yes Riley is going down hill but what I can say is he is doing alot better then where my Little Girl was bc he is almost 20months old and I am one proud mommy.. Riley is having alot more trouble with his stats when he goes to sleep at night and yes it does scare me because I don't know when... But I do know that God has been by MY and Riley side through all this and I would like to thank everyone for all the prayer's and still  pray for Riley Bug as he has so much more to come...

Wednesday, May 2, 2012

Long Time

Hello Everyone I am sorry I haven't wrote in a while there has been so much going on and I just got the Internet back up and going so for everyone wondering how Riley Bug has been here is goes.. Well first off he is still with us and that is a Blessing to me.. Second Riley has gone down hill alot more and we see it in him alot more to.. Riley was on a C-Pap because he was have difficulty breathing and all due to his disease and well it went great for about 3 months and then they had to change it to a Bi- Pap because he quits breathing during the night and they said that it could of been his last breath if we didn't change it over and well he is doing okay with it his (stats your still up and down ) but Riley bug is a big fighter... He has been so fussy and not wanting to be touched and it is very hurtfully because I cant love on him like I want to... RIley is 19 months old and this is very scary for me because at 19 months old my little girl passed away so I pray everyday that he makes it passed it and so far so good and I thank God every day for the days I get to spend with him..
He is an Angel sent from God and I just cherish every second with him because I never know what is to come and when so we enjoy Riley and we love to see him smile when he does smile.. Riley is going through alot still as far as his health wises.. but we know what is to come with it and it hurts because you really cant do anything but to love and comfort him as much as you can.. Not a day goes by that I am not thankful for the time I still have with Riley and for him to spend time with his big brother...Riley has had a couple more (Seizure's)..
Riley is so strong and not a day goes by that he doesn't try to be in a good mood but it is very rare that we see his precious smile anymore but we don't give up on that smile... We are still fighting for a cure
and we will not stop until there is one found... Please every one still continue to pray for my Riley
Bug as he is still facing this journey,,