Hello Everyone I am sorry I haven't wrote in a while there has been so much going on and I just got the Internet back up and going so for everyone wondering how Riley Bug has been here is goes.. Well first off he is still with us and that is a Blessing to me.. Second Riley has gone down hill alot more and we see it in him alot more to.. Riley was on a C-Pap because he was have difficulty breathing and all due to his disease and well it went great for about 3 months and then they had to change it to a Bi- Pap because he quits breathing during the night and they said that it could of been his last breath if we didn't change it over and well he is doing okay with it his (stats your still up and down ) but Riley bug is a big fighter... He has been so fussy and not wanting to be touched and it is very hurtfully because I cant love on him like I want to... RIley is 19 months old and this is very scary for me because at 19 months old my little girl passed away so I pray everyday that he makes it passed it and so far so good and I thank God every day for the days I get to spend with him..
He is an Angel sent from God and I just cherish every second with him because I never know what is to come and when so we enjoy Riley and we love to see him smile when he does smile.. Riley is going through alot still as far as his health wises.. but we know what is to come with it and it hurts because you really cant do anything but to love and comfort him as much as you can.. Not a day goes by that I am not thankful for the time I still have with Riley and for him to spend time with his big brother...Riley has had a couple more (Seizure's)..
Riley is so strong and not a day goes by that he doesn't try to be in a good mood but it is very rare that we see his precious smile anymore but we don't give up on that smile... We are still fighting for a cure
and we will not stop until there is one found... Please every one still continue to pray for my Riley
Bug as he is still facing this journey,,