Thursday, April 5, 2012
Riley's First Time in His Pool
Riley is relaxing in his pool :)
I finally got a smile out of him :)
Riley is a very happy Baby:) As many of you know that Riley is Still battling Niemann Pick Type A . Riley is on oxygen all day and he has to be put on a (CPAP) at night when he goes to sleep because his lungs are starting to close up on him so the (CPAP)helps keeps his lungs open and Riley is still having a lot of trouble with his o2 stats keep dropping but that is a sign of the disease taking over but all these thing that are happing with Riley doesn't keep him for begin (happy) Riley is a very happy,loving baby boy.. I am always one step a head of the Game with Riley and life is very hard but I cherish every second that I have with him.. Riley is going through alot right now and his body is shutting down but by the Grace of God with get through it... Please still contiune to pray for Riley as he is still on this jounery and also for my Family...