Well Riley went to his appointment on the 15Th and we thought they were going to send him home on (Oxygen ) but they sent him to the (ICU) the Childrens hospital MaconGeorgia.. At first they said that we would be here for the weekend to watch Riley.. Well bout an hour after we got here Riley (Stats)oxygen level dropped really fast into the 60s and his heart rate was really high, so they put him on oxygen 2 liters and well when Riley would go to sleep his stats would drop even with him begin on oxygen.. so the Dr. said that they are not sure how long Riley will be here for because his muscles are so weak that his lungs are closing up on him.. I know you cant only compare what is to come no i cant and it scares me because I am not ready for all this, no one can prepare there self for things like this ..They had to move Riley to what they call a High flow of oxygen which is at 7liter 40% because he is Stats are still dropping.. It is very hard to go to sleep because when you hear that alarm go off about every 20Min's its scary and all I can do at this point is to comfort him and love on him, Pray that God will heal him.. I have put it in Gods hands know.. I would like for everyone to still pray for riley because he is still having alot of problem breathing even with his oxygen on him.. I will post more later on but here is a little bit of an update.
Tuesday, March 13, 2012
Riley had an EEG done and he did alright wilth is and well I prayed for good news and I didnt get the good news that I would of liked.. The Results from his EEG showed that Riley has a Tendacy to have seizures that are noticeable and some that is nonticeable.. They said that Riley did not have a seizure then.. The Dr. do also say that any light or startles could trigger a episode.. SO when the dr told me that my heart stopped I was scared and was crying because deep down inside i know what was to come but I was hoping for the best and know its like I am always wondering if Riley is having a Seizure beacause they said I would not know sometimes if he is or not ... They also order him Baclofen 5mg but you have to crush it and give it through his G tube.. But truthly I havent gave him it yet beacuse I guess I am scared in a way to give it to him.. But what I can tell you is no matter how much pain or discomfort he is in, he always puts a smile on his face..
Hello everyone I am sorry I haven't posted any updates on here but I have been so busy with all Riley's Dr. Appt nd alot of things as happen in my family that I have not had a chance to write on here.. I do Apologize for it .. Here is the updates on how Riley has been and what all is going on with him now..
On Feb 18Th Riley went in for a sleep study and we had to wait two weeks and Riley's Dr had called me and said to bring Riley into his office and we had to talk about his results and I said okay is everything fine and he said he just need to talk to me so I went in the next day and he came in the room and told me that Riley has (SLEEP APENA)and that he stopped breathing 10time for like 5 to 7 seconds and it scared me so bad to hear that and I said well what are you going to do and they said for right now there was nothing they could do, just to watch him and to come back March 15Th and I was very up set about it ... Well on March the 1st We took Riley back to his office because his was having more trouble breathing and I just didn't like see him like that, I mean as a parent no one would want to see there child suffer and have a hard time breathing.. So when I took him back in,i told them to please do something, they said that Riley Muscles in his throat were very week and just to come back on March 15 Th and believe me when they told me that I was very pissed of because I felt like they didn't want to do anything for Riley because he had done it with my little Girl and they just keep saying unfortunately you know what is to come and then I said yeah and I think you should still treat him like your other Patience...Well we are still fighting with the drs.. about all this stuff ...