Saturday, January 14, 2012

Okay Day

Today was an okay day I mean last night Riley had to go to the hospital because earlier that day we were spending time with my husbands family which is Riley's Grandma and they came for a visit and to see everyone and any ways' so he was in his stroller and his Grandpa Ronnie pick him up out of it not knowing that he was on his feeds so needless to say he pulled the G Button out of his stomach and so we had to go to the hospital and we got it put back in, but it took them 7hrs to finally come and do it and so now Riley is sore but he is able to feed again so that was good... Well today Riley is still sore but he wasn't feeling so get because for the last two weeks now we have been battling this cold and he seems to not be able to get over it so well....

Riley is now where he cant do very much with his hands anymore but he still know how to use those feet of his, he still can smile and laugh at you .... You can tell more that the disease is doing alot more to his body, the more he grow, but even when he is not feelin up to playing or anything he still has a smile on his face.... Riley is doin better on the keppra now he is getting back to his old self again which i an so tankful for bc i dont think i could of dealt with it much longer bc i just could see him like that...

Friday, January 6, 2012

It's Friday

I know that it has been a while since i wrote, but i have been so busy with Riley, he has had a lot of doctor's appts.... and some were good and other's were bad news , but its nothing i have not hear before when my daughter had to go through it... On January the 3rd Riley was put on some seizures med called Keppra and they said that for the first week or two he will be very fussy and sleepy and i said okay as long as it help him i was okay with it... Well truth be told i am not okay with it because it made him cry a lot more and you would try to help him and he was not happy at all and it hurt me to see him like that because i knew that was not my Riley bug and yes i thought to myself was i doing the right thing by letting him have this or not because i just could not go another day with him like that... but in the end i stuck through it and even thou it hurts i know it is helping him and that is what i want to do is help him...

This is my little Angel Faith who fought for her life for 19 month and then she left me and it has been almost 5yrs that she has been in heaven know and if she was here she would be 6 yrs old.. I wonder every day what she would like or what kind of sport she would like to play and how her and her brother would get along and how i could play with her hair and sing to her.... I miss her so much and going through this battle for a second time brings back so many memories that i sometimes cant take but i know that i have my family and friends but most of all i have God to help and lead me through this.. here is some more of my precious baby girl:)

Aunt Nichole and I My Nana and I

This is my dad and Faith