Thursday, December 15, 2011

Past few days have been Rough

These past few weeks has been very hard because Riley is begin more fussier and he doesn't want you to touch him or even hold him anymore... It hurts to know that you cant do anything to help your child and to watch your child in Pain is very heartbreaking.... but we still can get a smile out of Riley. Riley is a loving and sweet baby boy who takes away every ones heart..





Riley in his Santa outfit:)




Love to be with his Brother:)



Even though Riley can not play like a 15 month old he still knows how to play with his brother who he loves dearly:) This disease took a lot away from him but it will not take the love that he gives to everyone who meets him... Riley is going through a lot right know he has to have a lot of test done and has to have a EEG done on him but he is one strong fighter...












Mommy and Riley 4ever:)



































Wednesday, November 16, 2011



Riley bug is 14month's old wow i cant believe it, the time has went by so fast and Riley is so amazing and even though he is going through all this stuff in his life i have to say my little guys is a trooper very strong little one:)Not a day goes by that Riley does not have a smile on his face even though he is in pain some time's he just keeps on going..





Here is my little trooper, He is my little Angel, His pretty blue eyes light up the world when you see him he will change your heart, his smile is so big and it just breaks my heart to see my baby go through this

Monday, November 7, 2011






Riley is sitting up on the edge of the couch all by his self :) yay, he is looking at his crazy brother Chris who is trying to make him laugh because all weekend Riley was not feeling good because he has another left ear infection but we try to make his days go by good.... Here is some more good time pictures of Riley for the day:)



Riley such a strong fighter :) He is not having the greatest day:( he has a bad left ear infection and came seem to keep it gone poor little guy and on top of that he is teething to ..... Riley can still roll over side to side, he can still smile or even laugh but his motor skill's r not doing so well know and it is very sad to see that.....


Wednesday, November 2, 2011

GOOD TIMES:)













RILEY'S FEEDING CHAIR:)


YES AT FIRST RILEY DID NOT LIKE THIS CHAIR AT ALL, IN FACTED HE HATED IT AND WOULD NOT SIT IN IT FOR NOTHING BUT ONE DAY HIS BIG BROTHER WAS PLAYING IN THE LIVING ROOM SO I DECIDED TO GIVE IT A TRY AND RILEY SAT IN IT AND WAS LAUGHING AT HIS BIG BROTHER WHO WAS PLAYING CRAZY AND FROM THERE OUT HE LIKE TO SIT IN IT TO WATCH HIS BROTHER PLAY :)


BIG BROTHER AND RILEY FOREVER:)




HAPPY DAYS WITH BROTHER:)


RILEY IS A VERY HAPPY BABY WHEN IT COMES TO PLAYING WITH HIS BROTHER CHRIS AND WHEN HE HAS HIS ELLE WHICH IS HE ELEPHANT BLANKET THAT HE CANT GO ANYWHERE WITH OUT IT:)




Tuesday, August 30, 2011

Photo shoot with the boys!

Today was a great day! It was the first day that the home nurse came out and they approved Riley for 40 hrs a week, so the nurse will be out monday thru friday from 7 to 5. It went good today with Riley. At first Riley was fussy with the nurse because he didn't know her but after a few hours he was okay with her.

Then later on we went and had a photo shoot of the boys done together. It went really good. Riley smiled with his brother. 









Saturday, August 27, 2011

Great day!

From his hospital stay
Riley had a great day. Loving my life with my two amazing children in the world that God has given to me and I wouldn't trade it in the world.
Riley has smiled all day and just been very happy. I haven't seen that in a while so it was great to see it again! 
Much happier!

Riley with one of his favorite nurses!



Big boy on the laptop!

Friday, August 26, 2011

Weight

Riley was in the hospital again on Monday and got out on Wednesday. He was put in the hospital because he was losing weight and not gaining. 




















He is doing better and has gained some weight. They said that he has to be on demand everyday which means that instead of being fed for 4hrs and off 2 hrs, the only way to keep his weight on him is to constantly feed him.




















Yesterday he went to his doctor's appointment and well, we got good and bad news. The good news is that he is gaining weight really well but the bad news is that his liver and spleen are even more bigger than they were before.

We will continue to keep you updated. Please keep Riley in your thoughts and prayers. 

















Thursday, August 11, 2011

Riley's 1st blog update!

Rileybug!
Riley will be 11 months old in just a few days! He has his ups and downs and lately has been fighting a virus. He also had a G-Tube put in to help him gain weight and protect him from aspirating.

Just before he got his G-Tube




















Riley can still hold his head up and roll from side to side. He loves to be around his family, to have his picture taken and his big blue eyes light up whenever he sees a dog! :-) He has a very high spirit and everyone can't help but fall in love with him.

Hanging out


Riley and his older brother Chris have a special bond and love being together. 

Brotherly Love
Riley has an elephant blankie that he can't go anywhere without! He also loves his stuffed animals, bath time in his duckie tub, and his bouncy seat! 

Elephant Blankie!



















Our days are crazy but we may be getting some help at home soon with a home health nurse. We are thankful for each day that we have together as a family. Thank you for checking out Faith and Riley's blog!

Monday, August 8, 2011

Welcome

Welcome to Faith and Riley's blog!